With a disease like dementia, there are no winners. Except maybe the people who make the drugs that cost a small fortune and don’t even work, but which people buy because it’s better than having no hope at all.
In my mother-in-law’s case, those drugs seem to be making matters worse. After a rough few days at the end of last week, my husband moved her in with us. It’s no longer safe for her to remain in her own home, even with a part-time caregiver.
There is a lot that I need to write about, just to get my mind around all this, but which I don’t want to publish here. This disease is cruel and embarrassing. The limits of my patience and capacity for mercy are definitely being tested. I am caught in the middle right now–stuck between what she wants and what she needs, and that’s hard when you’re talking about an adult.
So I guess that while I will continue to process this experience through writing, it’s going to have to stay unpublished. That’s OK too.
But I can say that I don’t know how to handle some things in the most kind way possible. For instance, making her coffee. Hubs gives her the cup of hot water, the jar of instant, the packets of blue sweetener. Then he has to remind her how much to measure in, and that she has to open the sweetener packets, not just throw them in the cup, paper and all. I just make her the cup of coffee and deliver it. It’s not like we can ask her which she’d prefer.
It’s a lose-lose situation.
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